ICAN's One-on-One Patient Advocacy
Welcome to the world of one-on-one patient advocacy—from diagnosis of cancer through all phases of treatment and care.
Why is this one-on-one advocacy necessary? Of all the illnesses that one can be diagnosed with, cancer is such a complex disease and is so defiant of a "cookie-cutter" or formulaic approach that the patient's level of stress, anxiety and confusion often starts out and stays at an all-time high. Such stress, of course, works against the internal stamina needed to fight the disease.
With a highly-trained, professional advocate who is savvy about the vast panoply of oncology issues, drug regimens, and clinical trials issues, and who has abundant information resources, patients have access to the very latest information, along with straight talk and any explanations needed.
That kind of "in-the-trenches" help throughout every stage of disease and treatment can make all the difference in terms of life-extending or life-saving care. It’s having a highly-knowledgeable ally with whom a patient can consult at every critical juncture … someone who goes so far as to outline questions for patients to ask their doctors, which will be most helpful in making all the right decisions and strategic moves in a very personal War on Cancer.
Because ICAN, among cancer organizations nationally, has the in-house resources to provide unsurpassed cancer patient advocacy throughout the patient's battle against cancer-- from diagnosis to victory, from diagnosis to stable disease with a high quality of life, or in some cases, from diagnosis to demise, confident that no stone was left unturned in the battle for life.
ICAN is the sole cancer patient advocacy organization headed by a Stanford-trained litigator and appellate lawyer, trained to master every patient case, detail by detail. Armed with twelve years of hands-on immersion into oncology and drug pipeline issues, Marcia Horn and her world class Program Services staff demonstrate a proficiency that’s regarded by both oncologists and patients as second to none. The key to this level of expertise as well as ICAN’s distinctive support of cancer patients includes:
- exhaustive, on-going analyses of hundreds of different cancers, subtypes, and their specific characteristics (including genetic expression)
- meticulous work in the field of anticancer drugs and the drug pipeline
- fluency in the range and limitations of chemotherapy "warhorse" drugs that have been around for four decades as well as new drugs that are proceeding through clinical trials
- systematic tracking of radiation oncology procedures, interventional radiology procedures such as radiofrequency ablation (RFA), and a thorough understanding of MRI, PET/CT, CT scans, and blood chemistries
What this means, most importantly, is that ICAN – given the necessary funding – has the capability to provide insight into what treatment options may be most effective for which patients thus making patient – physician appointments far more productive than otherwise would be the case. Furthermore, ICAN patients will continue to have access to the most up-to-date resources, information, and patient empowerment tools to be found anywhere.
When you die, it does not mean that you lose to cancer. You beat cancer by how you live, why you live, and in the manner in which you live. So live! Live! Fight like hell!
Stuart Scott, ESPN Anchor, Acceptance Speech, Jimmy V Award for Perseverance, 2014 who at the time was a seven-year cancer survivor. ICAN--and the millions of people who Stuart inspired--deeply mourn his death at age 49 on January 4, 2015.