Overview of
The Nancy Strauss
Hematological Cancer Patient Advocacy Program
Because of our Generous Supporters, ICAN patients involved in
The Nancy Strauss Hematological Cancer Patient Advocacy Program
have access to the following information services:
- Review and analysis of the patient's pathology report; review of the patient's medical history, current condition, and co-morbid factors; complete review of symptoms prior to presentation. Review the findings of laboratories that have performed DNA tests to better diagnose hematological and immunological disorders; review specific findings regarding blood, lymph node, and bone marrow; automated cell counting; cytochemical staining; immunocytochemical staining; flow cytometry; and molecular diagnostic tests.
- Referrals, at the patient's request, to hematologists, hematopathologists, medical oncologists, radiation oncologists, surgical oncologists, radiologists, interventional radiologists, anesthesiologists, and additional specialists relevant to the patient's ongoing care.
- Referrals to top notch hematopathologists for second opinions where necessary.
- Referrals to support groups that may be of assistance in handling the emotional impact that cancer has on the patient and the patient's family.
- Referrals to organizations that may be of assistance in addressing insurance issues or employment termination issues (because of diagnosis or disclosure of metastatic disease).
- Review of the nature/amelioration of specific side effects from chemotherapy (such as nausea and neuropathy) as well as from other treatment modalities.
- Discussion of the interaction of diet and cancer chemotherapy drugs based on recent studies.
- Delineation of the symptoms about which the patient should alert his/her hematologist/oncologist.
- Discussion of relevant lymphoma imaging technology.
- Discussion of pain management issues and treatment options that can be addressed with the patient's medical team.
- Explanation of the recommendations given or not given by the patient's physicians; assistance in answering the patient's questions which remain either after or between appointments with the hematology/oncology team.
- Review of the relevant radiotherapy/interventional radiology options which the patient contact, in turn, may discuss with their medical team.
- Discussion of the relevance of the patient's specific immunohistochemistry and cytogenetic results to available clinical trials so that the patient may explore all options with their medical team.
- Analysis of relevant hematological cancer clinical trials options as well as the nature and purpose of clinical trials using Remission Coach®.
- Review of relevant lymphoma-specific drugs in the hematological and anticancer drug pipelines.
- Review of all relevant and complementary and alternative medicine ("CAM") avenues.
- Review of the merits of filing a "Single Patient IND for Compassionate or Emergency Use" for a specific experimental cancer drug, if relevant to the patient's situation.
- Exploration of options that might reduce travel costs for the patient contact, such as Corporate Angels Network, as well as ICAN supporters who have volunteered to host a clinical trials patient in a particular city.
The Nancy Strauss Hematological Cancer Patient Advocacy Program
is a vital part of ICAN's Cancer Patient Advocacy and Clinical Trials Program Advocacy Services.
For more information about this special program, please click on.....
ICAN is currently working on The Nancy Strauss Hematological Cancer Patient Advocacy Program. We are working to put together a Family and Friends Advisory Council for the The Nancy Strauss Hematological Cancer Patient Advocacy Program. If interested, please email us at NancyStraussProgram@askican.org.
If you would like to become involved as a donor and supporter or a member of our Cancer Research Literature team as a Research Team Leader (medical school students, physicians, nurses, and post-docs only please), you may reach us at NancyStraussProgram@askican.org.
Federal Tax I.D.: EIN 86-0818253 | WA Charities: 37195